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MA Traumatic Brain Injury Waiver

Published on
August 22, 2023
Last updated
February 29, 2024
Written by
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Katie Wilkinson
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The Traumatic Brain Injury (TBI) Waiver supports adults with a traumatic brain injury who need facility-based care or are living in the community—also allowing participants to design and direct their services, including hiring and managing support workers, such as family members.
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If you are caring for a loved one with a traumatic brain injury, you may be wondering if there is any financial assistance available to help you with the costs and challenges of caregiving. Ahead, we explore one of the Medicaid waivers that may offer some relief: the Traumatic Brain Injury (TBI) Waiver in Massachusetts. This waiver supports adults with a traumatic brain injury who need facility-based care or are living in the community. It also allows participants to design and direct their services, including hiring and managing support workers, such as family members.

Overview of Traumatic Brain Injury (TBI) Waiver

The TBI waiver is a Medicaid program to help adults with traumatic brain injury remain in their homes and communities rather than being institutionalized in nursing facilities or other long-term care settings. A traumatic brain injury is defined as a brain injury that occurred after birth and that was caused by an external force, such as a fall, a car accident, a gunshot wound, or a blast injury. The waiver covers people between 18 and 64 years old, who have been determined to be clinically eligible for nursing facility level of care, and who meet the financial eligibility criteria for MassHealth Standard. MassHealth is the name of the Medicaid program in Massachusetts.

The TBI waiver offers a variety of services and supports that are tailored to the individual needs and preferences of each participant. The services are delivered through a person-centered planning process involving the participant, their family, and a case manager. The participant can choose between two service delivery models: agency with choice or participant-directed program.

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Eligibility requirements

To qualify for the TBI waiver, a person must meet the following criteria:

  • Have a traumatic brain injury that occurred after age 22 and before age 65
  • Be between 18 and 64 years old at the time of application
  • Be clinically eligible for nursing facility level of care, as determined by a standardized assessment tool
  • Meet the financial eligibility criteria for MassHealth Standard, which include income and asset limits
  • Live in their own home or apartment, or be able to do so with the waiver services
  • Require at least one waiver service that is not available through other MassHealth programs
  • Agree to participate in person-centered planning and service coordination

Services and supports

The TBI waiver provides various services and supports designed to help participants live independently and safely in their homes and communities. Some of the services and supports include:

  • Case management: A case manager helps the participant plan, coordinate, monitor, and evaluate their services
  • Day habilitation: A structured program that offers activities to enhance the participant’s physical, cognitive, social, and behavioral skills
  • Home health aide: A trained worker who assists the participant with personal care tasks such as bathing, dressing, grooming, toileting, eating, and transferring
  • Homemaker: A worker who helps the participant with household chores such as cleaning, laundry, shopping, and meal preparation
  • Personal care attendant: A worker who helps the participant with personal care tasks and other activities of daily living
  • Respite: A service that provides temporary relief for the primary caregiver by taking care of the participant for a short period
  • Supported employment: A service that helps the participant find and keep a job in the community that matches their interests and abilities
  • Transportation: A service that helps the participant access their waiver services and other community resources
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Compensation for caregivers

One of the benefits of the TBI waiver is that it allows participants to design and direct their services in partnership with a qualified provider agency or to hire and manage their support workers. This means that participants can choose who provides their services, including family members, friends, or neighbors. The waiver pays for the wages and benefits of these support workers through either the agency with choice model or the participant-directed program model.

In the agency with choice model, the participant selects a provider agency that acts as the employer of record for their support workers. The agency handles the payroll, taxes, insurance, training, and supervision of the workers. The participant can hire, fire, schedule, and direct their workers in collaboration with the agency.

In the participant-directed program model, the participant acts as the employer of their support workers. The participant is responsible for recruiting, hiring, training, scheduling, supervising, and firing their workers. The participant must also comply with the labor laws and regulations that apply to employers. The waiver provides a fiscal intermediary service that helps the participant with the payroll, taxes, insurance, and reporting of their workers.

Both models allow participants to pay their support workers at a competitive rate determined by the waiver. The rate varies depending on the type and level of service provided. For example, as of 2021, the hourly rate for a personal care attendant was $15.75. The waiver also covers the costs of worker’s compensation, unemployment insurance, and health insurance for support workers.

A note from Givers

If you think you or your loved one may be eligible for this waiver, or if you want to learn more about other Medicaid waivers that may compensate family caregivers, please fill out this form, and we will get back to you as soon as possible. We are here to help you navigate the complex world of caregiving and find the best solutions for your situation.

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