What is a Chronic Disease Self-Management Program?

Learn about Chronic Disease Self-Management Programs that empower caregivers and loved ones with chronic conditions to improve health and quality of life.
Published on
August 12, 2024
Presented by Givers
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Key Takeaways

As a family caregiver for an aging relative with a chronic condition, you understand the daily challenges of managing their health. The emotional toll, the overwhelming medications, and the countless appointments can often feel like a heavy burden. The good news is that Chronic Disease Self-Management Programs (CDSMPs) empower your loved one to live a healthy lifestyle. Every caregiver should take advantage of these plans.

What are CDSMPs?

Chronic Disease Self-Management Programs (CDSMPs) are structured workshops designed to help adults with chronic conditions, like diabetes, shortness of breath, depressive symptoms, heart disease, arthritis, and chronic pain, better manage their health and maintain active, fulfilling lives.

Originally developed by Stanford University in the 1990s, these management education programs and workshops are typically offered in group settings and led by trained facilitators who may also have chronic conditions.

In 2003, the Administration on Aging (AoA) began supporting the dissemination of these programs through competitive grants, targeting state agencies, nonprofits, universities, and tribes to expand and sustain these initiatives. The grants have helped deliver programs in partnership with local health departments and clinics, focusing on chronic pain and opioid abuse, and securing reimbursement through Medicare and Medicaid.

Since 2012, with funding from the Affordable Care Act's Prevention and Public Health Fund (PPHF), the AoA has furthered these efforts, introducing Capacity-Building and Sustainable Systems grants in 2018 to expand reach and develop sustainable delivery systems in underserved areas.

Workshop topics include everything from chronic pain self-management techniques, arthritis aquatic program, asthma self-management programs, behavior change intervention, and so much more. Participants learn practical skills and strategies to enhance their self-efficacy in managing their chronic diseases, leading to better health outcomes and improved quality of life.

Educational workshops

These self-management support programs teach participants about their chronic conditions, treatment options, patient self-management, and healthy lifestyle choices. These health care services provide many benefits to patients and practical tools to improve overall quality of life.

Peer support groups

Sharing activities and challenges with others who understand is incredibly valuable. Patients learn from each other and build a network of support for a healthy lifestyle and patient self-management.

Resources and printed materials

After the workshops conclude, patients are provided with resources and materials to continue their self-management journey. These may include educational materials, exercise guides, and tools for tracking symptoms and medications, like the Tool Kit for Active Living with Chronic Conditions.

These healthcare services and programs help participants solidify the skills and knowledge gained during the workshops and support their ongoing self-management efforts.

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Benefits of chronic disease self-management programs

Research has shown that CDSMPs can lead to a variety of positive outcomes for participants, including:

  • Improved self-management skills: Participants learn practical tools to manage their symptoms, medication adherence, and daily activities.
  • Increased physical activity: Activities often emphasize the importance of exercise and provide guidance on safe and effective ways to stay active.
  • Reduced pain and fatigue: Participants can learn self-management techniques to experience relief from chronic pain and improve their energy levels.
  • Enhanced emotional well-being: Social support, chronic disease self-management education, and a sense of control over their health can reduce depression and anxiety.
  • Improved communication with healthcare providers: Participants gain confidence in discussing their health concerns with their doctors.
  • Reduced healthcare costs: By managing their conditions more effectively, participants may require fewer hospital visits and medications.

How to find a CDSMP

CDSMPs are offered nationwide in community settings such as senior centers, health departments, libraries, and even online. Many of these are low-cost or even free, and some may offer financial assistance.

If you need assistance for your loved one, don't hesitate to contact your local Area Agency on Aging or your healthcare provider for more information on the cost and potential financial assistance. They will review your loved one's health conditions and recommend the best classes and tools.

They provide valuable information and support regarding senior services, health care services, aquatic programs, the Diabetes Self-Management Program, and self-management for people with epilepsy, chronic pain, and other chronic disease. These workshops and exercise classes aim to prevent hospitalization, review self-management of medications and diet, and improve the quality of life.

Stay connected with these health professionals to access self-management education, whether for mental illness, maintaining healthy lifestyles,  monitoring vital signs, or other treatments.

Self-management support programs for older adults

Note: This table is not an exhaustive list of all available programs.
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Support your loved one

How can family caregivers best support their care recipient? Be proactive. Intervene early and have open, supportive conversations about the health benefits of self-management support programs and healthy lifestyles with your loved one.

Offer to accompany them to patient workshops or treatment and be there for transportation or childcare if needed. Review hospital treatments that provide the best tools for self-management, especially for adults with disabilities or mental illness.

As a supportive listener, encourage them to practice what they learn. Together, you and your loved one can explore healthy lifestyles and use resources such as aquatic programs, diabetes health workshops, group exercise, and other tools to navigate chronic illness for more fulfilling, healthy living.

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