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IL HCBS Waiver for Persons with HIV or AIDS

Published on
June 4, 2024
Last updated
June 4, 2024
Written by
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Katie Wilkinson
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This program provides services and supports to individuals with HIV/AIDS ages 0 or older who meet a nursing facility level of care.
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See If You're Eligible

The IL HCBS Waiver for Persons with HIV or AIDS is a Medicaid waiver program designed to provide a range of home and community-based services. These services aim to help Medicaid beneficiaries with HIV or AIDS live in the community and avoid institutionalization. The program is notable for its flexibility, allowing the state to tailor services to the specific needs of this population. It complements other Medicaid State plan services and integrates support from various public programs and community resources.

Eligibility Requirements

Eligibility for the IL HCBS Waiver is determined based on several criteria, including income limits, disability status, and other relevant factors. To qualify, individuals must:

  1. Have a confirmed diagnosis of HIV or AIDS.
  2. Meet specific income and resource limits set by Medicaid.
  3. Require a level of care typically provided in a nursing facility.
  4. Be residents of Illinois and U.S. citizens or qualified non-citizens.
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Services and Supports

The waiver provides a comprehensive array of services and supports, including:

  • Personal care assistance: Provides help with daily activities such as bathing, dressing, and grooming to support individuals' independence at home.
  • Home health services: Offers medical care at home, including wound care, medication administration, and monitoring of chronic conditions.
  • Skilled nursing care: Delivers advanced medical care by licensed nurses for those requiring specialized health management and rehabilitation.
  • Emergency response systems: Utilizes technology to provide immediate assistance during emergencies, ensuring quick access to help when needed.
  • Adult day care services: Provides a safe and engaging environment during the day, offering social activities, meals, and healthcare services.
  • Physical, occupational, and speech therapies: Focuses on improving physical function, daily living skills, and communication abilities through targeted therapeutic interventions.
  • Respite care: Offers temporary relief for primary caregivers by providing professional care for individuals with special needs, allowing caregivers time for rest and self-care.

These services are tailored to meet the unique needs of individuals living with HIV or AIDS, focusing on maintaining independence and quality of life.

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Compensation for Caregivers

The waiver program offers a participant-directed option, allowing recipients to choose their caregivers. Caregivers can be compensated through the program, including spouses and other family members in some circumstances. To access compensation, caregivers must:

  1. Complete required documentation and training.
  2. Adhere to Medicaid’s billing and reporting procedures.
  3. Work within the guidelines set by the waiver for the type of care provided.

Limitations and Challenges

The HCBS Waiver for Persons with HIV or AIDS faces certain limitations, including funding constraints and eligibility restrictions. These can affect the availability and scope of services provided. Additionally, there can be challenges in coordinating care among various providers and ensuring continuity of care.

A Note from Givers

If you or a loved one are living with HIV or AIDS and need support, explore the IL HCBS Waiver. Fill out this form to check your eligibility for compensation and additional services.

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