Medicaid
4
min read

Medicaid Personal Care Services: Support for Independent Living

Explore the differences between Medicaid Personal Care Services and Structured Family Caregiving to find the best support option for your loved one.
Published on
September 3, 2024
Presented by Givers
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Medicaid Personal Care Services (PCS) help people with disabilities or chronic conditions to continue living independently. Ahead, we explore the differences between PCS and other care options, like Structured Family Caregiving, when choosing the best support for your loved one.

What are Personal Care Services (PCS)?

Medicaid Personal Care Services help people with disabilities or chronic conditions do tasks they would normally do on their own if they didn't have a disability. This help can be hands-on or through cues. PCS covers activities of daily living (ADLs) like bathing, dressing, toileting, meal preparation, and personal hygiene.

PCS may also include instrumental activities of daily living (IADLs) such as light housework or medication management; however, IADLs alone are not considered personal care services. PCS are most often offered in a participant's home. However, some may receive this support in day programs or other community settings.

PCS are optional Medicaid services, except when medically necessary for children eligible for Early and Periodic Screening, Diagnostic, and Treatment Services.

Eligibility criteria for Medicaid Personal Care Services

To be eligible for Personal Care Services (PCS) under Medicaid, a person must need assistance with activities of daily living (ADLs), such as bathing, dressing, and eating, to remain in their homes and communities rather than in institutional settings like nursing homes. PCS program eligibility and specific services can vary by state.

Applying for Personal Care Services

You can determine which Medicaid waivers cover Personal Care Services by checking with your state's Medicaid office or visiting their website, where available waivers and covered services are listed.

To apply for PCS under a Medicaid waiver, contact your state's Medicaid office or the agency responsible for administering the relevant Medicaid waiver. They will provide the application process, eligibility criteria, and necessary documentation.

Nursing and social assessment 

If it seems like you are eligible for a Medicaid waiver that includes Personal Care Services, a nurse or another qualified healthcare professional will conduct an in-home assessment to determine the level of care required. The results of this assessment help establish eligibility and tailor the care plan to your specific needs.

Caregivers role in developing a care plan

A care plan, or a service plan, is a personalized document that defines the specific services and support a participant will receive to meet their health and personal care needs. The care plan is built based on the nurse assessment and includes the types of services, the frequency of care, and the care goals. The care plan is usually developed collaboratively by the individual, their family or caregiver, and healthcare professionals to create a care plan that reflects the participant's preferences.

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Who are you caring for?

Can family caregivers provide Personal Care Services?

Family caregivers can provide Personal Care Services—and in some instances be paid for these services—if they meet the minimum qualifications established by their state to deliver Personal Care Services.

  • Relatives and/or legal guardians of a waiver participant can provide PCS if they meet the minimum qualifications established by their state and the state provides adequate monitoring.
  • Legally Responsible Individuals (LRI), meaning any person with a duty under state law to care for another person, such as the parent of a minor child or a spouse, can provide PCS at the state's discretion.

States are given several options from CMS for paying family caregivers in the 1915(c) waiver programs for Personal Care Services:

  1. The state can choose not to pay relatives or legal guardians for any waiver services.
  2. The state may pay relatives or legal guardians for certain waiver services under specific circumstances (i.e., no other qualified caregivers are available).
  3. The state may pay relatives or legal guardians for waiver services without specific circumstances if they meet the qualifications (i.e., as long as the family member meets the state's qualifications, they can be compensated just like any other caregiver).
  4. The state may have a different payment policy for specific types of relatives. For example, a state might allow siblings or adult children to be paid caregivers but exclude spouses or parents of minors based on the perceived potential for conflict of interest.

States decide on payment policies for family caregivers under the 1915(c) waiver programs based on factors like budget constraints, the availability of professional caregivers, and concerns about conflicts of interest. This means that family caregivers might be able to be paid for PCS under Medicaid waivers in some states but not others.

How to find a PCS provider if a family caregiver cannot get paid

Even if a family caregiver cannot get paid for PCS in a certain state, Personal Care Services can still be provided by an otherwise approved provider. Start by researching licensed home care agencies, asking healthcare professionals for referrals, and checking providers' online reviews. Family members can still help by coordinating care, overseeing the provider's services, and offering extra support to improve the overall care plan.

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Can you get paid to care for your loved one?

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Differences between Personal Care Services and Structured Family Caregiving

Family caregivers can be paid to provide Personal Care Services or Structured Family Caregiving, but there are differences in the structure and requirements of the programs.

Personal Care focuses primarily on the participant, offering flexible, non-medical support to help with daily activities like bathing, dressing, and meal preparation. The main benefit for the participant is the ability to receive tailored care from external providers, allowing them to maintain independence at home. PCS may be provided by family members but doesn't necessarily have the same level of program structure or oversight.

Structured Family Caregiving (SFC), on the other hand, emphasizes the role of the family caregiver, allowing a family member to be paid for providing care. The main benefit for the participant is receiving care from a trusted family member within a structured program, often with additional support and oversight.

Learn more about Structured Family Caregiving >>

Not all Medicaid waivers offer both or either service. Availability and eligibility depend on the specific waiver, state policies, and the participant's care needs.

A note from Givers

Navigating Medicaid services and finding the proper care for your loved ones can be challenging. Whether you're exploring Personal Care Services or Structured Family Caregiving, we're here to help you make informed decisions so your loved one receives the best care possible.

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