The President’s Committee for People with Intellectual Disabilities (PCPID) advises federal leaders on policies to support inclusion, rights, and independence for people with intellectual disabilities. Ahead, we explore the committee’s mission, recent work, and how you can get involved.
The President's Committee for People with Intellectual Disabilities (PCPID), established in 1966 by President Lyndon B. Johnson, advises the President of the United States and the Secretary of Health and Human Services on issues affecting people with intellectual disabilities. Its mission is to promote policies that uphold the rights, independence, self-determination, and community inclusion of people with disabilities.
The committee operates under the oversight of the Administration for Community Living (ACL). It consists of 34 members, including up to 21 citizen members appointed by the President for two-year terms and 13 ex officio federal government members, such as secretaries of key federal departments and agency leaders. Citizen members include parents, scientists, professionals, business representatives, and advocates in the field of intellectual disabilities.
The committee holds meetings in person at least twice a year and submits an annual report to the President with advice and distinct recommendations on issues affecting individuals with intellectual disabilities.
The PCPID doesn't provide direct financial assistance to families. Instead, it partners with organizations like the Disability Law Center and the Office of Civil Rights. These organizations improve the lives of people with disabilities through policy and advocacy.
Regular committee functions include discussing a broad range of topics relating to the disability field, common work issues, and the legal status regarding benefits.
The scope of the PCPID can include advocating for:
The PCPID collaborates with the Housing and Urban Development, U.S. Department of Health and Human Services, Office of Civil Rights, and other agencies to provide additional materials for the public.
The 2024 report, titled Advancing Independence and Community Integration for All, focuses on improving Home and Community-Based Services (HCBS) for people with disabilities.
It highlights key challenges and offers policy recommendations in four priority areas:
The PCPID report underscores the need for systemic reforms, collaboration across federal agencies, and investments to enhance the quality of life and inclusion of people with intellectual or developmental disabilities in their communities.
You can access an electronic version of the report here, or you can request an official print version from the Office of Intellectual Developmental Disabilities, or through the ACL website.
The President's Committee for People with Intellectual Disabilities (PCPID) invites the contribution and participation of people with intellectual disabilities and family caregivers.
You can attend one of the twice-annual PCPID meetings, which are available to the public to attend either in person or virtually. In-person attendees may need to register in advance as seating is limited. Virtual participation is available via Zoom after registration.
As a family caregiver or individual with intellectual disabilities, your lived experiences are invaluable for shaping policies and programs. The PCPID welcomes diverse viewpoints to inform its work.
Before the meeting, share your insights, experiences, or recommendations to be considered during the meeting. Feedback can be shared via the ACL.gov comment form.
Follow updates and resources on the Administration for Community Living (ACL) website.
Your involvement ensures that the voices of individuals with intellectual disabilities and their caregivers are heard and reflected in federal policy recommendations.
