Medicaid
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Options Available Under Medicaid for Autism Spectrum Disorder

Learn about Medicaid coverage for autism spectrum disorder including essential services, waivers, and tips to help families provide the best possible care.
Published on
August 23, 2024
Presented by Givers
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Early intervention and ongoing therapies can make all the difference for Autism Spectrum Disorder (ASD), a developmental condition characterized by challenges in social interaction, communication, and repetitive behaviors. For low-income Americans, Medicaid helps with coverage for those living with autism.

Medicaid coverage for ASD

Autism Spectrum Disorder is an eligible condition under traditional Medicaid and Medicaid waiver programs. While covered services, caps, restrictions, and wait times differ among states, ASD services generally include developmental screening, diagnostic testing, doctor visits, speech/behavioral therapies, prescription medications, and even specialist treatments like applied behavior analysis (ABA). 

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Coverage pathways for ASD services

Medicaid State Plan Authorities define how each state's Medicaid program operates, including which services, both mandatory and optional, states can offer to Medicaid beneficiaries.

These Authorities affect the services available to people with autism under Medicaid, like behavioral and speech therapy or developmental screenings.

Other licensed practitioner services

Other Licensed Practitioner Services are the healthcare services provided by professionals who are licensed but are not physicians, like nurse practitioners, physician assistants, and therapists (speech, occupational, and physical).

These services are particularly valuable for those with autism. For example, behavioral therapy, often provided by licensed therapists, helps develop communication, social, and daily living skills. Additionally, mental health support from licensed counselors or therapists can address anxiety or depression.

Preventive services

Preventive services help prevent illness, detect health conditions early, and manage health issues before they become more serious. Developmental screenings, which assess a child's growth and development, can help identify autism early, and early interventions like behavioral therapies and educational programs can help improve health outcomes.

Routine vaccinations are important to protect against illnesses that could complicate the health of someone with autism, particularly since some individuals with autism may have weakened immune systems or other co-occurring conditions.

These services are often included in regular well-child visits or routine checkups.

Therapy services

Medicaid covers therapies like occupational therapy and speech-language therapy to help autistic people develop independence and social engagement skills. OT supports daily activities and managing sensory issues, while SLP is key for enhancing communication skills.

  • Occupational Therapy (OT): Helps with daily living skills, sensory processing, and social interaction.
  • Speech-Language Therapy (SLP) Focuses on improving verbal and non-verbal communication.
  • Physical Therapy (PT): Assists with motor skills and coordination, though less commonly needed for autism.

Home and Community-Based Services Waivers

Section 1915(i) and Section 1915(c) of the Social Security Act both allow states to offer supports to those who need help living in their communities rather than in institutional settings through Home and Community-Based Services (HCBS).

The key differences between the two sections:

  • Section 1915(c) Waivers are designed for people who meet an institutional level of care, meaning they would otherwise require care in a nursing home or similar. This waiver allows these people to receive respite care, adult day health services, and habilitation in their homes or communities instead of institutionalization.
  • Section 1915(i) Waivers provide similar services but are available to individuals who do not necessarily meet the institutional level of care criteria. This waiver expands access to HCBS, offering support to a broader group of individuals who may still require significant assistance to live independently but do not qualify for Section 1915(c).

Several of these Medicaid waivers provide long-term supports and services to people with autism to live more independently within their communities.

EPSDT Benefits

The Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) benefit includes screenings for health and developmental issues, medically necessary diagnostic and treatment services, and access to a broad range of services for low-income individuals under 21. It is more comprehensive than Medicaid for adults, aiming to provide early detection, preventive care, and necessary treatment for children. For those under 21 who are eligible for EPSDT services, a 1915(c) waiver could provide services and supports for ASD that go beyond medical assistance.

Section 1115 Research and Demonstration Waivers

Section 1115 Waivers allow states to test new and innovative ways of delivering Medicaid services by waiving specific federal requirements. States can use these waivers to pilot specialized programs, offering more comprehensive and integrated care options for autism that go beyond standard Medicaid benefits.

Find section 1115 programs for autism here >>

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How to access Medicaid services for ASD

As a family caregiver of someone with Autism Spectrum Disorder, accessing Medicaid benefits can provide crucial support. Here are the steps to access Medicaid services for ASD:

1. Determine eligibility: Check with your state's Medicaid office to determine eligibility requirements for ASD services. These requirements may vary depending on the state but generally include age, income, and diagnosis criteria.  Gather necessary documentation, such as medical records and income statements, to support your application.

2. Apply for benefits: Once you have confirmed eligibility, apply for Medicaid benefits through your state's channels. Fill out the necessary forms and submit them along with any required documentation. Be prepared for a potential waitlist for high-demand resources like therapy services.

3. Work with a case manager: A case manager will be assigned to you to help guide you through the process, including authorizing services like therapy referrals and transportation assistance and periodically reconfirming eligibility.

A note from Givers

Navigating Medicaid benefits for Autism Spectrum Disorder can be complex, but with the proper support, it becomes more manageable. At Givers, we're committed to helping families access the care and resources they need to provide the best possible care.

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